Atlas of MS

The Need:

The Multiple Sclerosis International Federation (MSIF) sought epidemiological support to develop the third edition of the Atlas of MS, the most extensive worldwide study of the epidemiology of MS. The Atlas provides researchers, policy makers, advocates, and others the information needed to bring about change in the MS community. With this version, MSIF sought to broaden the Atlas’ reach by including new countries, increasing confidence in the data, and improving the accuracy of the global prevalence estimate.

Results:

McKing provided expert consultation, data management, and data analysis services to assist with creating the enhanced version of the Atlas of MS. Our team members assisted with the survey design to ensure high-quality data collection and analysis approaches were implemented.

We coordinated the dissemination and management of two online survey modules (epidemiology and clinical management) to more than 135 countries in three languages (English, French, Spanish). Experts in 115 countries responded (a response rate of 83%), including nine countries that reported in 2008 but not 2013, and 14 countries from which data was reported to the Atlas of MS for the first time. McKing cleaned and validated all survey responses to prepare the data for website and factsheet development.

We designed a confidence tool to measure the strength of the epidemiological evidence provided by each country. Additionally, we calculated the updated global prevalence of MS using a new methodology approach. Providing the most accurate and up-to-date estimate, we concluded there are 2.8 million people living with MS worldwide.